The Copenhagen Diabetes Consensus (CODIAC) 2021 conference aims to enhance knowledge about approaches to user involvement internationally and establish collaborative environments for knowledge sharing and the development of best practices.
Aim and background
The idea of user involvement is current fashion and a buzzword in the fields of health promotion, prevention, research and care – also in the field of diabetes.
Although many different concepts and names exist (co-determination, shared decision-making, patient and public involvement, co-design, participatory research etc.), they are all concerned with giving users a say in processes that are important to their own lives. But what do we know about user involvement - do these approaches make the processes and products more effective and more cultural embedded, and how strong is the evidence?
The overall aim of Copenhagen Diabetes Consensus (CODIAC) – User Involvement in Diabetes Care, Prevention, and Research is to summarize, communicate, and further develop the existing international, research-based knowledge about the value and impact of a user-involving approach in three different fields:
- Diabetes care (including emotional and behavioral aspects)
- Diabetes prevention
- Diabetes research
The conference is planned as a hybrid event, where a number of attendees are invited to interact in person at a venue in Copenhagen, while another group of attendees are expected to join the event online. A total number of 110 participants have been invited to join the conference.
The available international knowledge will be summarized by three researcher groups representing the three different fields listed above. Each group will present their finding which are then discussed at the consensus conference in Copenhagen. A fourth group – the users – will be preparing various inputs for the discussion and will be engaging with researchers and health care professionals during the conference. In this way, the conference topic – user involvement – will also be an important and integrated component of the processes taking place at the conference.
The work leading to the consensus conference in Copenhagen is structured by four groups that will summarize the value and impact of user involvement through a systematic mapping of relevant scientific literature. The Danish Diabetes Knowledge Center has had the responsibility for the methodological design of the systematic mapping in accordance with international standards.
Systematic analyzing of the scientific literature has occurred in three groups of researchers (diabetes care, prevention and research) addressing the following questions among others:
What is the international research-based evidence for the value and impact of user involvement, in terms of metabolic, quality of life, satisfaction and social measures and other relevant parameters?
Which methods and concepts have demonstrated potential for future work and development?
What are significant gaps in current knowledge, and how can they be addressed in future research projects?
What recommendations and suggestions should be made for future professional work and areas for development?
The user group will be preparing various inputs for the discussion during the conference, involving users’ views of the fundamental conditions, potential, and pitfalls of user involvement. This includes professional skills needed to support individuals with diabetes, roles and attitudes of researchers in user involvement projects etc.
The Group Concept Mapping (GCM) method, which is facilitated by the Danish Diabetes Knowledge Center, has involved researchers, user and health professionals in defining the most important elements of user involvement as well as the main barriers for the implementation. This product will also be an important input to the discussions during the conference.
Based on the presentations and discussions the following products are expected to be the outcome of the conference:
A white paper – Copenhagen Diabetes User Involvement Charter (CODUIC). This publication will comprise recommendations for future user involvement work within diabetes care, prevention, and research based on the scientific evidence, as well as an overview of priority areas for future development.
Articles from each researcher group, co-authored by group members and published in relevant journals.
A scoping review describing and categorizing the body of evidence about user involvement in the areas of diabetes care, prevention and research.
A plan for next steps after the conference, such as new projects to fill out gaps identifies, a potential next international event etc.