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Conference groups

Four working groups mapped the scientific literature on user-involvement and prepared inputs for the discussion at the conference.

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Systematic mapping of the scientific literature took place in three working groups of researchers addressing 1) diabetes care, 2) diabetes prevention, and 3) diabetes research.

In addition to these three groups, a fourth group of user representatives was involved in the Group Concept Mapping processes of brainstorming, sorting and rating, as well as in the discussions and development of the conference setup and content.

About the groups

This group covered care and support of individuals with diabetes within various settings including hospitals, general practices, municipalities, civil society, and patient associations. The group focused on contributing to research-based knowledge emphasizing the value, impact and limitation of user involvement.

  • Chair: Ingrid Willaing, Professor, Steno Diabetes Center Copenhagen, Denmark
  • Co-chair: Kasper Olesen, Senior Researcher, Steno Diabetes Center Copenhagen, Denmark

Highlights from the literature on user involvement in diabetes care (PDF)

List of reviews included in the mapping by the Diabetes Care Group

The focus was on settings such as municipalities, general practices, residential areas, schools, and civil society with an emphasis on conducting research-based knowledge within the area that underlines the value and limitations of user involvement.

  • Chair: Paul Bloch, Senior Researcher, Steno Diabetes Center Copenhagen, Denmark
  • Co-chair: Helle Terkildsen Maindal, Professor, Aarhus University, Denmark

Highlights from the literature on user involvement in diabetes prevention (PDF)

List of reviews included in the mapping by the Diabetes Prevention Group

This group covered research within diabetes care and diabetes prevention, and across various research traditions will such as as biomedicine, epidemiology, health promotion, and education. The group focused on creating research-based knowledge that highlights the value, impact and limitations of user involvement.

Focus was on conducting research-based knowledge within the area that underlines the value and limitations of user involvement.

  • Chair: Peter Rossing, Professor, Steno Diabetes Center Copenhagen, Denmark
  • Co-chair: Kirsten Elisabeth Lomborg, Professor, Steno Diabetes Center Copenhagen, Denmark

Highlights from the literature on user involvement in diabetes research (PDF)

List of reviews included in the mapping by the Diabetes Research Group

Members of the Diabetes Research Group

  • Glyn Elwyn, Professor, The Dartmouth Institute, USA

A fourth, facilitated group of user representatives summarized users' views of the fundamental conditions, potential, and pitfalls of user involvement. This included professional skills needed to support individuals with diabetes, roles and attitudes of researchers in user involvement projects and user-perceived opportunities and limitations.

The focus was on the development of a user-centered perspective to inform future user involvement. The work in this area, in which several cases are expected to play an important role, was presented at the consensus conference.

  • Chair: Louise James, Project Officer, Steno Diabetes Center Copenhagen, Denmark