Four working groups have mapped the scientific literature on user-involvement and prepared inputs for the discussion at the conference.
Systematic mapping of the scientific literature has taken place in three working groups of researchers addressing 1) diabetes care, 2) diabetes prevention, and 3) diabetes research.
In addition to these three groups, a fourth group of user representatives has been closely involved in the Group Concept Mapping processes of brainstorming, sorting and rating, as well as in the discussions and development of the conference setup and content.
About the groups
This area covers care and support of individuals with diabetes within various settings including hospitals, general practices, municipalities, civil society, and patient associations. The group will focus on contributing to research-based knowledge emphasizing the value, impact and limitation of user involvement.
- Chair: Ingrid Willaing, Professor, Steno Diabetes Center Copenhagen, Denmark
- Co-chair: Kasper Olesen, Senior Researcher, Steno Diabetes Center Copenhagen, Denmark
The focus is on settings such as municipalities, general practices, residential areas, schools, and civil society and the emphasis will be on conducting research-based knowledge within the area that underlines the value and limitations of user involvement.
- Chair: Paul Bloch, Senior Researcher, Steno Diabetes Center Copenhagen, Denmark
- Co-chair: Helle Terkildsen Maindal, Professor, Aarhus University, Denmark
This area covers research within complications, diabetes care and diabetes prevention, and various research traditions will, therefore, be included such as biomedicine, epidemiology, health promotion, and education. The group will focus on creating research-based knowledge that highlights the value, impact and limitations of user involvement.
Focus will be put on conducting research-based knowledge within the area that underlines the value and limitations of user involvement.
- Chair: Peter Rossing, Professor, Steno Diabetes Center Copenhagen, Denmark
- Co-chair: Kirsten Elisabeth Lomborg, Professor, Steno Diabetes Center Copenhagen, Denmark
Members of the Diabetes Research Group
- Glyn Elwyn, Professor, The Dartmouth Institute, USA
A fourth, facilitated group of user representatives will summarize users' views of the fundamental conditions, potential, and pitfalls of user involvement. This includes professional skills needed to support individuals with diabetes, roles and attitudes of researchers in user involvement projects and user-perceived opportunities and limitations.
The focus will be on the development of a user-centered perspective to inform future user involvement. The work in this area, in which several cases are expected to play an important role, will be presented at the consensus conference.
- Chair: Louise James, Project Officer, Steno Diabetes Center Copenhagen, Denmark